butterfly child
n.— «Children with RDEB, who are often referred to as “butterfly children” because their skin is said to be as sensitive as butterfly wings, develop painful skin and mucosal blistering, mutilating scarring, alopecia (hair loss), and other erosions shortly after birth.» —“Bone Marrow-Derived Stem Cells May Offer Novel Therapeutic Option for Skin Disorder” in Washington, D.C. MarketWatch Dec. 4, 2008. (source: Double-Tongued Dictionary)